DCO hosts monthly family chats and invites a medical doctor or researcher to join us. This provides you with an amazing opportunity to ask any questions you may have of a medical care provider who has knowledge of Dyskeratosis Congenita and Telomere Biology Disorders and the symptoms, tests and treatments that are recommended. Don't feel you have to join in, there are always plenty of questions and if you feel more comfortable listening, you are of course still welcome to join. If you cannot make the call, but wish to ask questions, please send them via email.
To join the meeting, email Katie Stevens at email@example.com so she can send you an invitation with the meeting’s call-in details.
Family Chat schedule for 2018
All times eastern
Sunday, January 14, 2018, 8 p.m., Dr. Sharon Savage - hosted by Lisa Helms Guba
Sunday, February 11th, 2018, 8 p.m., Dr. Fred Goldman
Click here to find out how you can support DCO in your next race!
Shan Terry"Science didn't understand my kids' rare disease until I decided to study it." - Sharon Terry
Smart Patients is an online community for patients and families affected by a variety of illnesses. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life.
Introduction to the DC/ TBD Patient Survey
To schedule time to chat about the survey, contact firstname.lastname@example.org. We welcome any comments, questions or suggestions!