Join a committee and help DCO make a difference! 


ASH Committee

Each year the American Society of Hematologists holds a convention that brings thousands of doctors from all over the world. DCO sends representatives to these conventions to educate mecical care providers and researchers on Dyskeratosis Congenita and Telomere Biology Disorders. For more information, contact robinhuiras@dcoutreach.org.

Clinical Guideline Committee

We are working on publishing our first Dyskeratosis Congenita Clinical Guidelines. This is a very exciting time for DCO as we have long strived to bring this vital resource to DCO families and medical care providers all over the world. For more information, click here or contact katiestevens@dcoutreach.org.

Family Retreat Committee

DCO has sponsored a family retreat every two years in Casco, Maine at Camp Sunshine. We hope to hold our fourth family retreat in 2016 but now need to fundraise to help make that happen. To help fundraising efforts towards our next camp, please contact robinhuiras@dcoutreach.org

Fundraising Commmittee

Do you have any fundraising experience or would you like to be an integral part of supporting DCO and its goals? We are currently working on fundraising for the publication of our very first clinical guidelines and would love to have your input! To join the fundraising committee please contact lisahelmsguba@dcoutreach.org.

Newsletter Committee

Do you have a story to share or an interest in writing about events and news happening in the DC community? If so, please contact robinhuiras@dcoutreach.org.

Nomination Committee

This December brings openings for new board members to join DCO. For more information, or to nominate someone, please click here or contact robinhuiras@dcoutreach.org.

Outreach Committee

Connecting our families to one another and providing them with information and support is DCO's primary mission. We would like to have you join our outreach committee and help to make a difference in the lives of families living with DC. We are currently branching out in Australia and New Zealand and would like to build our outreach in Europe. To be a part of the outreach committee please contact rachelgodfrey@dcoutreach.org.

Website Committee

If you have some knowledge of web design or would like to learn, DCO would like to have your help to maintian and update informaiton on the website, keeping it current and informative. Please contact rachelgodfrey@dcoutreach.org


DCO Pacific, Inc.

DC Outreach, Inc. is expanding and a new group is currently forming in Australia and New Zealand. If you would like to be a part of this exciting new endeavor, please contact connect@dcopacific.org