The Aplastic Anemia & MDS International Foundation www.aamds.org
The Gastrointestinal Manifestations of Telomere-Mediated Disease http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3602337/
Synonyms: Hoyeraal Hreidarsson Syndrome, Revesz Syndrome, Zinsser-Cole-Engman Syndrome
Pulmonary Fibrosis Resources:
Bone Marrow/ Stem Cell Transplant Centers:
RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients.
Global Genes™ is one of the leading rare disease patient advocacy organizations in the world. They build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease. Global Genes™ and their leaders are committed to ensuring that our programs support their worldwide mission of awareness and outreach, education, innovation and technology and research, and collaborative partnerships.