Camp Sunshine 2016

Camp Sunshine 2016

On the beautiful  shores of Sebago Lake in Casco, Maine, friendships blossom and memories are made, never to be forgotten.

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Support, Talent Shows, Learning,  Climbing Walls, Growing, Swimming, Education,  Games, Friendships

Everyone participates, laughs, plays and delights in new friendships and experiences.

Meantime throughout the days, adult patients and caregivers learn and grow  as they absorb the information presented by the medical and scientific community.

 What is DCO  - DCO Board

DC Management and Treatment - Dr. Alison Bertuch

Pulmonary Fibrosis in Dyskeratosis Congenita (DC)(Slides 1-35) - Dr. Ivan Rosas

Pulmonary Fibrosis in Dyskeratosis Congenita (DC) (Slides 36-72) - Dr. Ivan Rosas 

BMT for DC: late effects and new approaches - Dr. Suneet Agarwal

Research and progress in dyskeratosis congenita - Dr. Suneet Agarwal

Dyskeratosis Congenita:Inheritance and Genetic Counseling - Dr. Sharon Savage 

Dyskeratosis Congenita: Neurologic and Psychiatric Complications - Dr. Sharon Savage

Transitioning to Adult Medical Care for Patients with Dyskeratosis Congenita - Dr. Tim Olson

Dyskeratosis Congenita-specific Bone Marrow Transplantation: Less Toxicity, Better Outcomes Dr. Jakub Tolar

Everyone departs armed with new knowledge to help with day-to-day struggles and problems, but now, with a new community of support and friendships.

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