DCO Board

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Katie Stevens, President

Katie Stevens lives in Northern Idaho with her husband, Josh, and their four children. Their oldest child, Riley, was diagnosed with Aplastic Anemia when he was 11. Three months after ATG treatment his telomere lengths were tested. They came back at less than 1%. Katie and her son Riley moved to Boston in July 2015. On September 3, 2015 Riley received a reduced intensity BMT from a unrelated donor. They are now both back home. Riley is doing great!! Katie's goal is to be an advocate and resource to the DC/TBD community. “You can’t do anythng about the length of your life, but you can do something about its width and depth.” You can contact Katie at katiestevens@dcoutreach.org.

 

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Rachel Godfrey, Vice President

Rachel lives in Southern California and stays at home with her two boys, ages 8 and 5. Her oldest son, Ronan has DC and had a bone marrow transplant at the age of 3 from an unrelated donor. She and her husband Nick were so grateful to find DC Outreach as soon as Ronan was diagnosed in January 2011, and were able to reach out to other families and doctors that had experience with DC. Rachel joined the DCO board in 2014 and hopes to reach out and help other families dealing with DC. You can contact Rachel at rachelgodfrey@dcoutreach.org.

 

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Lisa Helms-Guba, Treasurer

Lisa was elected as the treasurer for DC Outreach in 2014. Lisa is a retired Air Force Lieutenant Colonel having served for over twenty years as a critical care flight nurse in the Air Force and Commander of an Air Staging Facility for injured troops evacuated from Afghanistan and Iraq. Currently, Lisa works in pediatric injury prevention programs in the state of Maryland and serves on various local and state committees. Lisa has previously been the treasurer for an Armed Forces Club in Honduras and for her Homeowner’s Association. While in the military, Lisa lived in six different states and three countries. Currently, Lisa lives in Annapolis, Maryland with her family. In her spare time, Lisa volunteers at her son’s school, church and Boy Scout troop. Lisa loves the great outdoors and can be found most days downhill skiing, bicycling, gardening, hiking, kayaking and sailing. Please feel free to contact Lisa at lisahelmsguba@dcoutreach.org​.

 

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Diane O'Mara, Secretary

My name is Diane O'Mara and I live in Stewartville, MN. I currently work in Information Technology at the Mayo Clinic in Rochester, MN.  My husband Linus and his twin brother Leonard were diagnosed in the early 1970's. In those days, not much was known about DC. Leonard passed in 1986 and Linus in 1991. Later three of my children were diagnosed. My daughter and her husband were involved in DC Outreach from the beginning. DC Outreach has made such a difference in so many people's lives. I attended Camp Sunshine for the first time in October of 2014 and was blown away by the knowledge, the love and the support given by the doctors,  staff,  volunteers and participants.  I was especially impressed by the hard work and dedication of the board. I  decided that I would like to be a part of the board so that I could help to make a difference. You can contact me at dianeomara@dcoutreach.org.

 

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Emily Dziedzic, Board Member

Emily Dziedzic lives in Portland, Maine and was elected to the board in December 2016.  She is a licensed Private Pilot, with a Bachelor's and Master's degree in Aviation Management.  After a 10 year career in the aviation industry, Emily left the field to pursue a career in wellness.  She is currently a Licensed Massage Therapist and has her own practice in Portland, Maine.  Emily got involved with DCO after volunteering during the 2014 and 2016 DC sessions at Camp Sunshine.  Emily is excited to be a part of the board and looks forward to helping with fundraising efforts.  You can contact Emily at emilydziedzic@dcoutreach.org.

 

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Brittany Guijoza, Board Member

My name is Brittany Guijoza. I was born and raised in Greensboro, NC. I Graduated from NC A&T SU with my Bachelors in Laboratory Animal Science. I married my high school sweetheart and have 3 wonderful children, 2 beautiful girls and 1 handsome son. I am a Lularoe fashion consultant while being a stay at home mom. In 2015 we found out that my son Lathyn had Dyskeratosis Congenita after numerous tests and surgeries. He was diagnosed with it in July 2015 and passed away from it in September 2015 only being 16 months old. The hospital determined that I have the DKC1 gene mutation that gave him DC. There was nothing that anyone could have done for him since it got worse quick. That is how I found out about the DCO and strive to get the word out about DC. I even wear my Lathyn bracelet everyday to remind me to be strong like my son. You can contact Brittany at brittanyguijoza@dcoutreach.org.

 

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John Marcone, Board Member

John Marcone lives in Canton, MA with his wife, Susan and three children, Nicole, JC and Matty.  He has been in the commercial roofing business in Boston for many years and serves on many roofing industry boards.  He got involved with DCO following the diagnosis of his son Matty five years ago and the passing of Susan’s brother.  He has been involved in many fundraising events and looks forward to using his skills and experiences to benefit DCO.  He is an avid Boston sports fan, enjoys golf and playing hockey. You can contact John at johnmarcone@dcoutreach.org.