DCO Board

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Katie Stevens, President

Katie Stevens lives in Northern Idaho with her husband, Josh, and their four children. Their oldest child, Riley, was diagnosed with Aplastic Anemia when he was 11. Three months after ATG treatment his telomere lengths were tested. They came back at less than 1%. Katie and her son Riley moved to Boston in July 2015. On September 3, 2015 Riley received a reduced intensity BMT from a unrelated donor. They are now both back home. Riley is doing great!! Katie's goal is to be an advocate and resource to the DC/TBD community. “You can’t do anythng about the length of your life, but you can do something about its width and depth.” You can contact Katie at katiestevens@dcoutreach.org.

 

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Rachel Godfrey, Vice President

Rachel lives in Southern California and stays at home with her two boys, ages 8 and 5. Her oldest son, Ronan has DC and had a bone marrow transplant at the age of 3 from an unrelated donor. She and her husband Nick were so grateful to find DC Outreach as soon as Ronan was diagnosed in January 2011, and were able to reach out to other families and doctors that had experience with DC. Rachel joined the DCO board in 2014 and hopes to reach out and help other families dealing with DC. You can contact Rachel at rachelgodfrey@dcoutreach.org.

 

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Lisa Helms-Guba, Treasurer

Lisa was elected as the treasurer for DC Outreach in 2014. Lisa is a retired Air Force Lieutenant Colonel having served for over twenty years as a critical care flight nurse in the Air Force and Commander of an Air Staging Facility for injured troops evacuated from Afghanistan and Iraq. Currently, Lisa works in pediatric injury prevention programs in the state of Maryland and serves on various local and state committees. Lisa has previously been the treasurer for an Armed Forces Club in Honduras and for her Homeowner’s Association. While in the military, Lisa lived in six different states and three countries. Currently, Lisa lives in Annapolis, Maryland with her family. In her spare time, Lisa volunteers at her son’s school, church and Boy Scout troop. Lisa loves the great outdoors and can be found most days downhill skiing, bicycling, gardening, hiking, kayaking and sailing. Please feel free to contact Lisa at lisahelmsguba@dcoutreach.org​.

 

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Emily Dziedzic, Board Member

Emily Dziedzic lives in Portland, Maine and was elected to the board in December 2016.  She is a licensed Private Pilot, with a Bachelor's and Master's degree in Aviation Management.  After a 10 year career in the aviation industry, Emily left the field to pursue a career in wellness.  She is currently a Licensed Massage Therapist and has her own practice in Portland, Maine.  Emily got involved with DCO after volunteering during the 2014 and 2016 DC sessions at Camp Sunshine.  Emily is excited to be a part of the board and looks forward to helping with fundraising efforts.  You can contact Emily at emilydziedzic@dcoutreach.org.

 

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Bruce Friedman, Board Member

Bruce lives in West Chester, Pennsylvania with his wife, Pattie and their two children, Noah and Katie.  Their oldest son, Josh was diagnosed with DC when he was eight years old and passed away in 2011 at the age of seventeen.   In addition to spending time with his family, Bruce enjoys bicycling, sports, and recently completed a Masters Degree at the University of Pennsylvania (Penn) in Organizational Dynamics with a concentration in Organizational Consulting and Executive Coaching.  Bruce also works at Penn and serves on the Board of Bournelyf Special Camp.  Feel free to contact Bruce at brucefriedman@dcoutreach.org

 

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John Marcone, Board Member

John Marcone lives in Canton, MA with his wife, Susan and three children, Nicole, JC and Matty.  He has been in the commercial roofing business in Boston for many years and serves on many roofing industry boards.  He got involved with DCO following the diagnosis of his son Matty five years ago and the passing of Susan’s brother.  He has been involved in many fundraising events and looks forward to using his skills and experiences to benefit DCO.  He is an avid Boston sports fan, enjoys golf and playing hockey. You can contact John at johnmarcone@dcoutreach.org.


Committee Chairs

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Annie Catlin, Wellness & Advocacy 

Anne (Annie) Catlin lives in Rockwall, TX (a suburb of Dallas) with her husband, Eric and their two sons, Silas (age 3) and Hayes (21 months).  With a degree in Special Education, Annie has taught primarily high school Learning Support for 14 years, however for the last three years she has been a stay-at-home mom to her boys, all the while, splitting her time with Bournelyf Special Camp where she has worked for the past 27 years (in various roles), and as the Executive Director for the past five years. Annie is personal friends with Bruce Friedman and his family and has worked with Bruce, Pattie, Noah and Katie, all whom have worked or volunteered at Bournelyf, where their oldest son, Josh was a camper. When she is not running after her boys or devoting time to Camp, Annie enjoys baking, traveling, being an avid sports fan and volunteering at church, school or in the community. You can contact Annie at anniecatlin@dcoutreach.org.

 

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Dena Paffas, Communications

Dena Paffas lives in West Chester, PA, and works for Penn Dental Medicine in West Philadelphia.  In 2013, Dena received her Bachelor’s Degree in Speech and Communications from Millersville University.  She is currently working on her Master’s Degree from the University of Pennsylvania in Organizational Dynamics.  Dena is an avid reader, and enjoys spending free time with her family and friends. You can reach Dana at denapaffas@dcoutreach.org.

 

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Maggie Rowe, Education Liaison 

Maggie Rowe, LICSW, CCLS, is a clinical Social Worker and Child Life Specialist in Spokane, WA.  She is currently serving as the program coordinator and hospital-school liaison for the Andrew Rypien School, an education program within Sacred Heart Children's Hospital.  Maggie has worked as a Recreation Therapist, Child Life Specialist, and Social Worker for children with various chronic illnesses, disabilities, or injuries since 2003, and more specifically children with hematology/oncology diagnoses since 2010.  As an Education Liaison, Maggie looks forward to helping you find the right type of education support for your child in your home community.

Some general info:
School is a major part of a child's life and connection to normalcy. Given a complex diagnosis like DC, school can feel like a low priority, and if we're realistic, sometimes it has to be.  However, a strong connection to school can also be an anchor of hope for your child when health takes unexpected turns.  Fostering that positive connection to school through long or short absences can be tricky.  Many major medical centers have an education specialist, teacher, or dedicated Social Worker on-staff to guide you through the various resources available to your child.  Resources and services like home or hospital-based tutoring vary State by State, so finding local expert guidance is paramount.  Many children with DC would qualify for school support services through Special Education. You can find some helpful links here. If you're unsure of where to start, or want to talk through your child's current educational plan to see if you've maximized resources, consider reaching out to Maggie Rowe for support.  She can help you brainstorm and connect you with additional resources closer to home. Maggie can be contacted at maggierowe@dcoutreach.org