The National Cancer Institute (NCI ) is sponsoring the largest North American study of its kind to focus on people with rare inherited bone marrow failure syndromes (IBMFS)  and their immediate family members.  This large group, or cohort, is called the NCI IBMFS Cohort.  The study’s pupose is to:
  • Examine the underlying genetic disorders of those diagnosed with an Inherited Bone Marrow Failure Syndrome (IBMFS) and their families
  • Analyze how certain factors can affects the course of these syndromes, particularly the connection between these disorders and cancer
  • Follow families over a period of years​
For more information on this study please contact 1-800-518-8474 to speak with a member of the research team.
You may e-mail with any questions about this study.​
You may find more about this study at